Posts tagged ‘Herceptin’

March 24, 2013

Fig rolls and Herceptin

Last week I had another intravenous Herceptin dose.

Herceptin1

I took Jacob’s Fig Rolls (which are vegan and the best and less calories than most biscuits) to have with the hospital coffee. They do look after us in the chemo suite…endless cups of coffee and biscuits but I can’t be sure their biscuits are vegan and their sandwiches definitely aren’t. This time it only took three hours.

I also saw the pharmacist who explained the procedure for having the next fourteen doses administered at home. I think this is a fantastic service but he seemed to be almost apologetic about it. I get the feeling many patients see this as a cop out by the hospital but I see it as a caring way to make this treatment easier for me.

All things being well, I won’t be going to the chemo suite again. I shall still see the staff there as my oncologist appointments are in the same department.

When I got home I had this :o)

Gin

I love Fevertree (and Waitrose) tonic water as it doesn’t have sweeteners in it. All the others, even the Fat Tonic Waters have saccharin or aspartame in and I don’t want that stuff in my food and drink…it also tastes vile. There are a lot of things I don’t want in my food and drink. To this end I try to avoid processed or intensively farmed/grown produce. I’m buying organic when I can (Jeez that stuff’s expensive sometimes) and, as ever, I make our meals from scratch.

I’ve been advised to avoid dairy as this contains too many hormones which have been given to the cows to increase yields. Lucky I’m vegan then and knew all this and wouldn’t want to have something which had caused the cow to suffer anyway. Lucky I also don’t eat any animal flesh as this is so full of growth hormones it’s scary. I’m being given drugs to block all these things where they occur naturally and I don’t want to introduce unnecessary extras.

TB has downloaded to his Kindle (there must be a verb for that…Kindled) Eat & Run by Scott Jurek. He’s an ultrarunner (wow…there’s an actual word for him) and a vegan. TB is wondering if a vegan diet will improve his triathloning…well, yes, of course it will.

My fingernails are getting worse…hey ho.

Three days till I have my boobs evened up…

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September 5, 2012

Need a builder? Call me quick x

I took a massive dose of steroids last night as instructed and was bouncing off the ceiling. I took another massive dose this morning and will take another this evening. So, if you need your garden landscaping or a kitchen extending overnight, I’m your man. Give me a call and I will be round faster than a fast thing!

Docetaxol incognito because it’s light sensitive.
Interestingly, one of its side effects is me being light sensitive so need sunblock (sun?), shades, dark nails…

Monday was my first infusion of Herceptin…had to spend six hours at the hospital as it’s nasty stuff and they
need to monitor me to make sure I have no adverse reaction, which I didn’t.
Tuesday was an ECG as Herceptin can cause heart damage, even failure, so that will act as a benchmark
for regular checks; also had pre-chemo blood test.
Today. was my first infusion of Docetaxol, my new chemo drug.

At about half past midnight last night, after we’d exhausted all the television options (isn’t there some awful crap on there?) I said we should go to bed as TB needed to sleep even if I didn’t. After about half an hour in bed he asked (with a smile) if I was going to stop talking so he could sleep or should we get up again. Can’t help thinking now that I missed an opportunity for some all night luuuurve…

And a huge Thank You to Captain John and Mrs Captain for helping out with the children on Monday. Being able to have TB with me for a couple of hours made such a difference.
xxx

July 20, 2012

Medicinal Chocolate!

Right then…first chemo session (I’m having FEC-T, four sessions of FEC then four sessions of T, but you’d worked that last bit out, hadn’t you?) was ok. It was a long day…we arrived at 8.30am and left at 3.30pm but were told that was partly because I saw The Chemo Guy on the day of the chemo rather than the day before. For us, it is actually better that way as it saves losing another day’s work.

Here I am, prepped and waiting to be attached.

The first two drugs, Epirubicin (it’s red and makes your wee pink for two or three days…I like pink but usually go for it in a nail colour or pink sapphire way) and 5 Fluorouacil (5FU) are injected slowly into the cannula by a nurse and takes about an hour and a half. It’s a great time to ask all sorts of questions. Actually, that pink wee thing applies to all body fluids so there’s a chance my contact lenses may turn pink…bring it on!

It was during this that I was told I mustn’t have Take Aways as the risk of infection is too high. I was aware that chemo will supress bone marrow so my white cell count is low thus my immunity is low but I hadn’t realised just HOW LOW. Apparently, week two of the three week cycle is when it’s at its lowest. To help boost it, on Day 5 a nurse will come to my house and give me an injection. On days 6 – 9 TB will give me the injection…the nurse will show him how!

I was also told I absolutely, no messing, no resisting MUST HAVE a bar of chocolate a day to increase my sugar intake.
So if Green & Black would like to sponsor me I’m happy to endorse their vegan chocolate.

The next drug, Cyclophosphamide, is in a bag and fed through a tube to my cannula. It hangs on a thing with wheels so I can wheel it to the loo with me. (You know what I mean, the type of thing Jack Bauer could drag around with him for a whole 24 hours while he saves humanity.) Ah, but I need the drugs in my right hand as my cancer is in my left breast…and of course, the loo paper is on the right hand side of the loo. Luckily, I’m pretty flexible :o)

We passed some time after prepping playing chess but abandoned the game to talk to my nurse. We may carry on from this position at the next session I’m playing as white…email me any hints you may have!

Other bummer related news (I won’t only blog about cancer I promise, but at the moment it’s a bit full on)
I knew I had Stage2, Grade2, ER+ cancer but now know it’s also HER2+. You can google but sod that!
It means the cancer is more aggressive than I thought and I will need a further 18 sessions for the drug Herceptin (that’s about a year!). The first four sessions will be at the hospital then we’re hoping
the rest can be administered by a nurse at home.

I’m also very anaemic due to a “girls’ issue” ;o) and this means extra weekly blood tests to monitor my iron levels because if I drop too much (and the bone marrow thing makes this worse) treatment has to wait. So I have iron tablets to bring it up and keep it up…funny, ’cause normally they tell me they’re going to help me keep things down.

Yet again, I’m completely in awe of the NHS. The treatment, care and consideration I’m receiving are what’s making me cry the most…but crying a good way. Also, your messages are fantastic and make me do that crying-in-a-good-way thing, too…so thank you to all of you and please don’t stop…and Messrs Green & Black, if you really want to make me cry… xx

I was too FECed (geddit?) last night to do anything other than sleep so we didn’t watch “24”. I can’t remember what precarious predicament we’ve left Jack Bauer to face without us…